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Gillian.
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Hello, I am a 50yr old female who was told 25yrs ago that I had Arthritis in both hands. I always felt that there was something more going on and tried on so many occasions with different doctors to find out. When someone at work, in 2014, suggested it sounded like C.T I went back to my Doctor and she arranged the N.C.S. I have not seen the results but remember in my dominant right hand it was a 4? described as 'moderate' and the left hand was slightly below that.I do remember thinking there was nothing 'moderate' in terms of the pain I was in! I had my first surgery in 2014 in my dominant r/h which was unsuccesful and then my left hand which at first felt somewhat improved. Since then I have had a Trigger Finger release middle finger, right hand and surgey again on my right hand. My pain is worse than it's ever been. Both my hands are swollen, hot and painful. I wish I could attach some pics. From waking up they just get more painful and swollen until I'm stuggling to do anything. Just getting dressed and making a cup of tea is nearly impossible and by late afternoon my hands are 'pumping' with hot pain and swelling. I am having steroid injections in both hands for the arthritis but they don't seem to be helping. Over the years I have taken a variety of medication, over 20 tablets a day (the reason I lost my job eventually) now i use a 20microgram/p/h Butec patch and co-codamol for pain. I don't know where to go next? My doctors don't seem to realise how much pain i'm in and I really don't know what to do next? Any advice would be much appreciated please. Thank you, Gillian.

jeremydpbland
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That's very late in the overall story to be joining it. At first glance it does sound like a bit of a mixture of arthritis, CTS and tendon problems and I rather doubt if there is a single 'magic diagnosis' that will suddenly resolve all the problems I'm afraid. If I were to try and assess this I would need all of the NCS results and probably some new ones now, perhaps along with some ultrasound imaging. You can send me any NCS results you do have and photographs via email if yo want me to take a look but I'm not optimistic about solving the problem easily. Sorry! JB

Gillian.
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Thank you for your reply. Yes, I wish I had contacted you sooner. When I was first diagnosed I found your site and felt reassured by your advice to others. i went for my first operation with great expectations. Perhaps I was at a disadvantage with the late diagnosis? I don't have any NCS results but I will request them. I havn't had any ultrasound images done. I will send you pictures of what my hands look like on a daily basis. I will request some NCS tests again, although it feels as though the doctors have given up on me? I really appreciate your interest. Thank you, Gill.

Gillian.
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Sorry, I can't seem to find an email address? Thank you.

jeremydpbland
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You obviously succeeded. I've replied by email for now. Thanks for the pictures. JB

JIllian
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Hello Dr Bland, I am pleased to tell you that I have an appointment at The Hallamshire tomorrow the 15th of August for n.c.s. I have been unable to access my accounts after an unexpected shut down, so I have had to open another one with a J not G. My appointment is at 11.00am and I look forward to hearing the results. Thank you, Gillian.

jeremydpbland
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I've emailed you about the accounts on here. Make a note of who does the tests and if you want me to have a look at the results ask them if they wouldn't mind sending me a copy. JB

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